ILYA FREY

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10 NOVEMBER 2016

ILYA FREY

Ilya has always been a healthy and very active boy. He loves running and climbing trees, and going ice skating in the winter and cycling in the summer. So when in the summer of 2013 he came back from holidays in his grandmother’s village with bruised legs, his mother wasn’t worried. He’d probably just fallen over somewhere or bumped into something. But when the bruises, instead of going away, spread across Ilya’s whole body, his mother made sure he got examined at the oblast children’s hospital. There, following tests, Ilya was virtually instantly diagnosed with acute lymphoblastic leukaemia. What followed was a bitter struggle with the disease. First Ilya went through five blocks of chemotherapy at the Nizhny Novgorod hospital, and then he received a bone marrow transplant at the Russian Children’s Clinical Hospital (RDKB) in Moscow in July 2014. To prepare for the transplant, Ilya needed the medicine Alkeran. Although it is registered in the Russian Federation, at that time it wasn’t being supplied there, so Ilya needed help from the GOL foundation to obtain it. Recently, Ilya was placed in the RDKB once again, as three and a half months after the transplant he suffered from an acute rejection reaction. He is currently in remission.